First of all, thank you to everyone who has reached out after reading the post yesterday! Didn’t really expect that huge feedback actually. I have chosen from the get go to be very open with my condition. I hope that maybe someone will find inspiration from my situation and see that even if you have a chronic condition that is not as normal or definable, you can do whatever you want. Your condition doesn’t define who you are. I have also found that it is easier for my surroundings to know about my condition so if I pass out they don’t freak out but know what to do.
Is it frustrating to have a condition like this? Absolutely. And not just frustrating but embarrassing. I don’t want people to worry about me. I am a very independent person and to accept that I need help sometimes hard. Every time I have to go to the hospital a lot of thoughts goes through my mind afterwards. Why me? Why can’t I get answers? Why this, why that? Every time is a set back that has to be overcome both mentally and physically. I don’t just walk out of the ER, brush everything off and walk on like nothing happened. I may look like that, but home alone with my dogs there are a lot of thoughts and tears shed.
Suggestions has come that I should have a roommate. And that is a strong NO. Several reasons… 1. BamBam. My big deaf Great Dane. He is very scared of people he doesn’t know. For example… He knew my mom from birth. He never got comfortable with her during the 1.5 year we lived here and she was alive. It would freak him out to have someone else living here. And my dogs are the most important to me, they have the right to feel 100% safe in their own home.
2. I don’t need a nanny. I don’t want anyone to move in here with a “responsibility” to keep an eye on me. I am an adult person that need my own space and when I am home I don’t want anyone to watch every step I take. If I want to do something, I do it without asking anyone. There is a reason I am still single… And my syncope episodes comes about once every 6-8th months… that doesn’t justify to have a roommate for that purpose. So don’t even try to convince me…

The weather is finally getting warmer. It was really awesome yesterday afternoon and even though I had said that I wouldn’t do any workout this weekend, just rest; I just couldn’t resist to take a walk yesterday afternoon. And I am so glad that I did.

Both Twix and BamBam loved it! It didn’t go fast but I was able to go my regular route. And I was able to do it without any pain or dizziness and that was awesome! It felt like a huge step forward for me.

This morning I decided to do another walk. It was a little bit cooler and more wind but the sun was out so I wanted to give it a try. Not as great as yesterday. My legs were sore and my body a little more tired but we did good anyway. Had a little headache when I came home but it was easily fixed with some Excedrin.

We had the Spring Forward Time Change today so now it will be daylight longer in the evenings. I am excited about that. I won’t have to stress home after work to have time to take the dogs for a walk before it gets dark. I hope that I can get more walking in even on the days I work. The walks help me avoid to have the syncope episodes. It is actually very important for me to do the workout and walking is just something that fits me well.

Going back to work tomorrow. A long week again, working 6 days. But it will be nice to come back to some kind of normalcy. Hopefully my body and muscles will be on the same track as my brain! Wish me luck!